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Showing posts from April, 2013

no answer for the weary...

Over the past month I've added a new doctor to my very long list-dermatologist.  I've had this terrible rash from head to toe!  It continually got worse.  So, I head to the dermatologist he examines me, sits down, and with folded arms say, "Wow, that's impressive.  I don't think I've ever seen anything like that" ....and he did a biopsy.  A couple Thursday's ago as I'm hooked up just about to start my remicade and I get the call....one of your slides is showing shingles--STOP THE REMICADE!  On meds for shingles I go and back to derm. ASAP to give him more skin!  I was able to have my remicade a week late and boy was I feeling every single day!!  I've also gone back for the stitches removal and follow up to dermatologist.  Here's his words... "You present an interesting case.  If I diagnose you, it would be a guess.  You have so much going on.  If you have another huge break out I need to see you immediately so that we can try and

education or ignorance...

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Please take a moment to read the article.  So, helpful and true for those of us who suffer with this horrible disease called ankylosing spondylitis.  Also, if you could make a donation to this TAX EXEMPT organization that would be awesome!  www.spondylitis.org    By Dr. Walter P. Maksymowych      There are several aspects of Ankylosing Spondylitis that are only now becoming more widely appreciated in the medical community that have major implications for its treatment. As is so often the case, this has arisen following the application of a new technology, in this case Magnetic Resonance Imaging (MRI). This has enabled us to better understand the conundrum as to why patients with AS have a more fragile skeleton despite the overgrowth of bone that is so typical of this disease. This, in turn, has led to the introduction of additional therapeutic approaches for this disease.      Why do patients with AS have a more fragile skeleton? It is of some considerable interest t