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Showing posts from January, 2011

I have chronic pain what you need to know if you don't

Reading on the ankylosing spondylitis awareness page....they ask a question- What do those of us who have chronic pain-live with chronic pain- wish that those of you that don't knew. If we wrote a letter what would we say---reading so many of the comments and wanting to "like" them all, I decided to just steal them! Copy them here for you to read. It's exactly how I feel. It's exactly what I'd say! They need to be shared! It's not easy for those of us with chronic pain. It's not easy living with AS! So take the time to read... -Enjoy being able to do whatever you want without thinking of the consequences -Sometimes the pain is so bad, I'd rather die than face it another minute -Sometimes it causes me to scream and cry or bring a grimace to my face -Don't forget to thank God for the ability to eat without throwing up or walk without a shuffle or limp -"Sucking it up" is not always an option-sometimes nothing helps -Don't tel

2011-already!

Thinking of the past year and the "new" things/challenges that occurred and what this year will bring! -past-A child that graduated high school and started college! Who I might add, is doing fantastic! -current-a child that will turn 16 and start driving/being more independent than she already is if that is even possible! -past-the death of my dear cousin Sandi who lost the battle to cancer and was so young -current-Sandi's daughter having a child Gosh so many things throughout the past year that I could list and thinking of "things" that are already in the planning stages for this year...like--current-2 brothers getting married! YAY! It's been a great Christmas with family and friends. Time to focus on what's ahead! I was asked by one of my siblings if blogging helped me. No, it's not for me. I'm hoping that it'll help more of you understand what AS is. Hoping that my family and friends will somewhat understand why the simple things ar