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Showing posts from October, 2014

ankylosing spondylitis and sceritis and a continual "flare"

2 injections of Simponi down..is it working?  Well, I won't know until about 4 months--which is 4 injections (this is a monthly injection).  I love hearing from my rheumy, "well, we're out of options". I love hearing from the eye doc, "I'm getting worried"--of course I don't love either of these comments.  How'd you sleep last night? Do you wake from the worst pain and wish you could just sleep? I lost hours last night, as I do most--from pain. Ankylosing spondylitis and scleritis doesn't stop, rest or sleep. My body is continually attacking itself-joy?! You can't have a little AS, you either have it or not. The pain doesn't stop or go away. You can have more pain or less, but it's always there. Some folks call these flares--well, I've been in a flare since I was diagnosed, so I really don't believe I have flares. I just believe I have good days and bad. Here lately, there are mostly bad. The scleritis in my eyes is