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Showing posts from July, 2014

The. Fight. Exhausting!

Why is it that with an autoimmune disease that we have to fight so much?  We fight to get out of bed.  We fight to make it through the day.  We fight to just live a normal life, which for the most part, is gone and will never return.  So, why must we continually have to fight for care? For folks to understand?  For knowledge?  For medication?  This exhausting fight is ridiculous.  I think for the most part, everyone is just so confused.  Confused as to what we have.  Confused what will help us.  I'm so tired of talking with women from all over the world who have DOCTORS telling them, "well, it's not AS, because that's a man's disease".  Yes, I've even been told something similar, "wow, ankylosing spondylitis is a man's disease"....ummm really?!  Just yesterday I saw a post where someone suggested it's not autoimmune but auto-inflammation...well, AS causes inflammation in the entire body.  All I know is that sometimes I feel as if I kn