Ankylosing spondylitis wife, mom, and grandmom!

You may wonder why I blog about this life-long Ankylosing Spondylitis (AS) journey that I’m on.   I didn’t just start right when I was diagnosed.   It took me some time to understand what I had just been told and also time to learn what exactly AS was.   I couldn’t even pronounce it!   Why do I have to deal with this for the remainder of my life?   There were so many questions and still to this day, questions seem to arise. My blogging started simply because there were a few of us AS folks who had “found” each other via the internet.   We all seemed to have the same story to tell, but yet in some aspects our stories varied.   The disease itself may vary, but we were all suffering and finding it hard to locate correct information about AS.   We began sharing and even blogging on the same topics.   Even when we all had the same topic, it seemed our “blogs” were different and helpful! During that time of “group” blogging, I realized I ne...

I think I always start with how long it’s been since my last post.   Also if you are the grammar police, then don’t read anymore!   I’m certainly horrible at grammar and spelling, and don’t need to be told!   The last several months have been a real struggle for me.   In September I started having hives and I don’t just mean a little breakout.   I’m talking covered from head to toe and even down my throat.   Shots and steroids were given for what we thought was an allergic reaction….but to what?!   So, I went off meds and started adding one at a time—NOTHING!   Who knows what the cause was.   So, I go for my SimponiAria infusion in October and a couple days later…BAM covered again!   Shots and steroids and NO MORE SimponiAria. This has to be the cause.   Granted I do NOT want to be COVERED in hives again, but this was the LAST TNF for me!   I’ve been through all that are AS approved.   This did not make me happy, be...