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Showing posts from January, 2018

Loving being a grandmom and still hating AS!

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Those of us living with this horrific disease would love to be able to say.....I’M CURED!  Instead we just keep on “doing life” the best we know how! Seems I had a lot of comments asking questions about “how to help”....well, first let me say that I’m not a doctor.  This blog is intended to give those of us who suffer information and knowledge about AS, and let’s face it, it’s basically things happening with me and things I learn from others!  It’s all about sharing and very important that we realize that we all present differently and sometimes even have differing symptoms and pains!  But the more we share and get the word out there about AS, the better our care will be!   Some comments have been how to help without medicine.  Folks—-I’m not sure you can do that!  How do you manage a disease without medicine?  Find a good rheumy and get on a drug protocol that will MANAGE your AS.  Sometimes you go through a LOT of trail and error fi...