Ankylosing spondylitis wife, mom, and grandmom!

Don't you love hearing the comment, you must be feeling better today--why?  Why do they say this?  Am I smiling, laughing or not limping..what makes someone say, "you must be feeling better today".   I really want an answer to this statement.  I do have days that are worse than others, but for the past hmmm maybe 4 to 5 years, I've had pain.  Recently things were just getting worse and worse.  I'm on Remicade now and I do think it's helping.  BUT and this is a BIG BUT---there is NO CURE for what I have.  Those of us with "invisible illnesses" understand each other.  It's much easier for someone with a sickness that can be "seen" in some way.  For those of us that have diseases that can't be "seen"---it's more difficult.  You may ask why?  Well, because if you can see it, you believe it.  That's simple enough! We refer to ourselves as spoonies for a reason (and those of you with an invisible illness who do not k...

Looking at my last post..Dec 1 so I guess I'm just aiming for monthly here lately.  Well Christmas (holidays) has come and gone.  It was a wonderful time with family.  2011 is gone and 2012 has begun.  I'm not one for making "resolutions" and really think they are a waste of breath!  I feel as we should live each day as if it's our last.  Making every single day count!  Not just Jan. 1st!  I mean seriously how many folks actually keep the resolution they made...I bet it's few to none! Getting diagnosed with a life changing illness will sure make you "think" about "life" and how you live it!  2011 was certainly challenging financially and physically.  The economy is like a slow sinking ship right now and I really don't see an end at the moment.  So changes were made in that area and you know..it's all good changes.  You don't just buy/spend.  You really focus on things that are needed instead of wanted (big difference her...