Long time no write...
#thatmoment you log in and realize WHOA it's been way toooo long since the last blog! Things are on the up and up for our "life". We can now say debt-free! YEP! DEBT FREE! It really feels so good to know that you have no debt holding you down. As for a house, well, we're renting now and hubs says he doesn't know if he'll EVER buy another home. We like the idea of not having a mortgage and most importantly calling someone else to fix a broken "whatever"! It would be fine with me to rent a small something here and a small something there...just saying ;)
Can NOT believe that both of my girls have one more semester of school--SR in college and SR in HS?? Say what???!!! When did this happen? I'm not ready!
As for the ankylosing spondylitis--it's still here. There's no cure. Had someone walk up to me the other day and ask how my back was (that's how he asks about my disease) and I said, "I'm ok". He says, no you're really not. I then say, it's life. This will be with me for my life--he pats me gently and says you're always so positive. I say, I have to be can't let it get me down. I know he's trying to understand and be supportive and the next time I see him, we do the same thing again. :)
So--how am I? Well, Monday is surgery day! Going to repair a badly damaged shoulder. See with ank spond it's not just the back. It's not just one thing. My body is destroying itself from the inside, joint by joint. I have narrowing in the neck as well. So, that's the next problem to address. So for now, Christmas shopping is done and I'm ready to be down a week (yes, I'm saying week ha). I'll still be on all the "drugs" folks often ask about that. There's NO END because there's NO CURE. My future? I don't know...but I don't know about the next hour. I do know this, I may not know what tomorrow holds, but I do know who holds it! What better time to be reminded of this that the precious gift of Jesus who was born to die! Know anyone else whose sole purpose of birth was death? I think not. Jesus was born so that he could die on a cross for us...for me! So, at CHRISTmas, I always immediately think of the reason He was born. Thank you Jesus for saving me. Thank you for assuring me, that while I'm on this earth it may not be perfect, but with you I can manage and most importantly know that one day, my body will be whole again!
AS has my body, but NOT me!
Can NOT believe that both of my girls have one more semester of school--SR in college and SR in HS?? Say what???!!! When did this happen? I'm not ready!
As for the ankylosing spondylitis--it's still here. There's no cure. Had someone walk up to me the other day and ask how my back was (that's how he asks about my disease) and I said, "I'm ok". He says, no you're really not. I then say, it's life. This will be with me for my life--he pats me gently and says you're always so positive. I say, I have to be can't let it get me down. I know he's trying to understand and be supportive and the next time I see him, we do the same thing again. :)
So--how am I? Well, Monday is surgery day! Going to repair a badly damaged shoulder. See with ank spond it's not just the back. It's not just one thing. My body is destroying itself from the inside, joint by joint. I have narrowing in the neck as well. So, that's the next problem to address. So for now, Christmas shopping is done and I'm ready to be down a week (yes, I'm saying week ha). I'll still be on all the "drugs" folks often ask about that. There's NO END because there's NO CURE. My future? I don't know...but I don't know about the next hour. I do know this, I may not know what tomorrow holds, but I do know who holds it! What better time to be reminded of this that the precious gift of Jesus who was born to die! Know anyone else whose sole purpose of birth was death? I think not. Jesus was born so that he could die on a cross for us...for me! So, at CHRISTmas, I always immediately think of the reason He was born. Thank you Jesus for saving me. Thank you for assuring me, that while I'm on this earth it may not be perfect, but with you I can manage and most importantly know that one day, my body will be whole again!
AS has my body, but NOT me!
Thanks for yr post i am also suffering from this AS for last 20 yrs, in INDIA we have developed a drug very recently which may be helpful. This is my mail ID yenghosh@yahoo.com i am from kolkata India.
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