Flare or just paying for what I do? ugh!

By -


Everyone talks about getting "flares". I don't know that I get flares....do I? I do know that I pay dearly for what I do! It's more like a "side-effect" for LIFE!

I'm not going to stop...I REFUSE! Yes, I'm YELLING! It frustrates me to no end to know that it KILLS ME to walk to the football stadium on game day--and sitting on bleachers...who invented those??!!! It KILLS ME to teach on Tuesday! It KILLS ME to work a full day on Wednesday. It KILLS ME to lead in worship on Sunday and then work with my teens that afternoon. BUT I will NOT give in and stop! So, do I have flares?? Who knows...I hurt all the time..sometimes worse than others and I just think of what I did and then say..oh, right--paying for yesterday.


My beauties game day!!!


Methotrexate seems to be kicking my butt right now! Thinning hair and nausea is the bad. So, if you see me on Thursday...that's my choice of being that YUCK day. Seems to be the day I have the least to do. I can stay home and just feel like CRAP! Isn't it wonderful to select a day of the week you want to feel "sick" and trust me theres nothing worse than a METHOTREXATE HANGOVER!

Want to share several great blogs/sites to visit---knowledge is key! AS needs to be heard and not just by those of us with this terrible disease, but to EVERYONE. There are so many folks who are misdiagnosed first (me being one of them)...there's not enough knowledge about AS.

And now, the joy of today....yep med day...Enbrel injection this morning and then after church methotrexate injection. Just loving me some Wednesday....

Great blog--I could copy it word for word!!!!! This is how I feel today about it being the methotrexate day....read....
http://www.unitedvas.com/

Join this organization and help ASer's!!!!!
http://www.spondylitis.org/

Comments

  1. wirelessconnectionsSeptember 23, 2010 at 11:38 AM

    So Sorry Mel.I wish I could take the pain from you.I love you honey.MOM

    ReplyDelete

Post a Comment

Popular posts from this blog

when your DR says, "you are making my brain hurt"

By -
Image
The moment the ophthalmologist puts his hands on the side of his head and says, “you’re making my brain hurt”.   Have you ever had this happen while at the specialist for a recurring visit? I have!   AS is in my eyes! Living with ankylosing spondylitis (AS) has certainly been a challenge. When you’re diagnosed they really don’t tell you all that can happen.   Basically, they just tell you about the potential for spinal fusion.   They leave out that AS can damage every joint in your body!   They leave out that AS can affect your eyes, your heart, your lungs, can cause inflammation behind your vocal box (not fun for this singer) and yes, can cause death. Why is it that so much information isn’t shared when you’re diagnosed?   One reason is simply that some doctors aren’t fully aware of what AS is and does.   Another reason is there is too much old data and information out there.   And lastly, AS effects each person differently.   Autoimmune diseases are complicated and hard to di
Read more

3 jaw surgeries in one year?!

By -
Image
Ankylosing Spondylitis (AS) effects each person differently.  There's no magic cure for those of us that are living with this disease.  It's a trail and error of medication and sometimes changing your life style.  There are some "common" things that happen in those of us with AS such as-- The main similarities that can occur with any type of spondyloarthritis are: Inflammation in the pelvis and spine that usually causes inflammatory back pain Pain and/or swelling of any other joint in the body (hips, knees, ankles, feet, hands, wrists, elbows, shoulders, etc.) Uveitis/iritis , the rapid onset of marked pain and redness in one eye at a time Psoriasis skin rash Inflammation in the intestine (Crohn’s, ulcerative colitis, undifferentiated colitis) Dactylitis, or “sausage digits”, the inflammation along the tendons of the finger or toes Enthesitis, inflammation where tendons and ligaments meet the bone; this commonly occurs at the back or bottom of the heel. Pa
Read more

Weight loss/gain/bloating/gassiness.....

By -
Don’t confuse inflammation with weight gain/loss and/or bloating Just let that sink in a minute.  Some have already stopped reading...if you're wanting knowledge and education of inflammatory disease...continue on... Let me just begin this post by saying…yes! I’m going to make some of you mad and you’ll probably unfollow me on social media…I don’t really care. In a world of be careful what you say or post-- In a world of #metoo--- In a world of “political correctness”---- I see a LOT of folks saying (posting pictures) look at all this inflammation I had and now look at me.   Yes!   I see you’ve lost WEIGHT, but I do NOT see inflammation.   So to kick off this New Year full of get your gut right, drink my drink and/or join the gym and everything will be perfect in your life STOP! JUST! STOP!   You are actually insulting those of us who truly suffer from an inflammatory disease; those of us who are PRESCRIBED the only thing that will help with inflammation.   Do I belie
Read more