Sunday, March 13, 2011

AS remicade..think I'll have another

First remicade infusion was last Thursday. Saying I was all ready, would be a lie. I was nervous about the first time for this new medication. While you read or talk with folks about side effects they may have had all meds are different for all people! I was so thankful that Lang was going with me. We get there and I'm about to head in when we get told, Lang can't come back with me-wth! So, I've got to do this alone and he's got to sit in the waiting area for 2 1/2 hours---really???!!!

So, once back in the room, the nurse proceeds to tell me the reason that Lang is not allowed to come in is because she is discussing "health" records/procedures and it's confidential. OK--well, there's 3 of us in the room getting procedures--me and 2 men who have gastro diseases and are on remicade--so I can hear, but not my husband?! That's really kind of stupid!

The procedure went well--no side effects other than being extremely tired. It took 2 1/2 hours and my next will be in exactly 2 weeks. Then every 4 weeks after. I am anxious to see how the medication works for my ankylosing spondylitis. I've really gotten to a point where I'm sooo hoping that this works for me. The AS has been VERY bad!

So, here's to remicade...think I'll have another!

1 comment:

  1. Meloni - I pulling for you.. Me: 4.5yrs on Remicade and grateful every single day :) Loved the post - thank you doc, may I have another - LOL that's great!!!

    ReplyDelete