Ankylosing spondylitis wife, mom, and grandmom!

Hurricanes, earthquakes--- well, not exactly it's called ankylosing spondylitis! That's my storm I'm living in and through. While storms generally come and go they sometimes leave a "mess" that can be cleaned, my storm has made landfall and keeps churning! If only it would pass and let me clean up the mess. I'm worried that the mess it's continually spawning on my body will leave severe long term damage for my future. Those of us who have ankylosing spondylitis only wish there were planes flying in to evaluate this disease---knowledge and research is sooo needed. Even finding doctors who "truly" know AS can be hard! There aren't many medications for those to weather this storm! We don't want to "mask" it! We want to defeat it! We can't even prepare for this storm that's causing havoc on our bodies. There's no evacuation and boarding up...it's every minute of EVERY day that we stand in 200 mph winds holding...

I think this entry is probably the easiest to write! What would I do without my significant other..Lang! I think of how hard the past 4 years have been as I've been diagnosed with a horrible disease. Something that I never would wish on my worst enemy...yet, something that not only affects me, it also effects my family and my husband! He tries to understand what I'm going through and I in return try and understand what he is going through. You may be saying right now, but he doesn't have ankylosing spondylitis....and I just stop and think...obviously neither do you or your significant other because that wouldn't be your thought! Chronic diseases effect everyone they are around! For those living with a chronic disease you know how important it is to have support. That person who will let you just lay there and do nothing because that's all you can do! That person who stays positive for you and yet lets you be all grumpy if need be. That person who all the sudde...

I understand why some people get to the place of hope being lost or having no hope. Each day a person that suffers from a chronic disease has questions of hope; -I hope I can make it today with no pain -I hope I can endure the pain -I hope I can get a good nights rest -I hope that since I'm not sleeping, I won't suffer tomorrow -I hope that I can make the plans with friends -I hope my friends will understand when I cancel -I hope I can clean my house today -I hope nobody stops by because my house hasn't been cleaned in days -I hope I can do the laundry -I hope everyone still has undies since I don't feel like doing laundry -I hope I can make it to the grocery store today -I hope we have something in the house to eat because I just don't feel like moving -I hope they can get my disease under-control -I hope they find a cure -I hope I can walk up those stairs -I hope nobody is behind me, cause I'm going slow -I hope I don...