Ankylosing spondylitis wife, mom, and grandmom!

Christmas holiday fun has taken on a new challenge for me. I guess I've had AS my entire life, but the "switch" wasn't turned on until a couple of years ago. With that, I've only been diagnosed with AS for 1 year now. SO...the simple and fun things that you just "do" during those Christmas holidays are taking on a new meaning for me! Seems this year has been a bit hard. Hard to hold out! I want to do those same things I've always done and more! My body is sometimes yelling...SCREAMING at me to stop! But, my mind and my heart are screaming back..NO! So, for now..I'm going to be in pain cause it's certainly worth it! Lake Lanier girls trip to see the lights and BTW Callaway Gardens lights are waaay better! But, they don't have a fair so it was a great trade off! Santa asks the girls, "do you know who's birthday it is?" My girls, "Jesus". Santa, "that's a great thing to know"! Yes it is Santa and nev...

Living with ankylosing spondylitis (AS)can sometimes be very hard. Take today for example..couldn't open the turkey to make my sandwich, so my 15 year old did it for me. I am thankful that I can Christmas shop right here on-line! No, walking and carrying packages! Just a bit of rambling today. It's raining...everything hurts, but I am blessed. Blessed to have my family! Both of my girls are so amazing and smart! Both made B's or better on their grades for the 1st semester (college and high school). Blessed to have such an awesome husband! Really need to take a methotrexate shot..haven't in 2 weeks, but I truly do NOT want to feel so nauseous. Took my enbrel injection and realized that the reaction I have to it is pretty bad itself. This medicine that we MUST have really does kick your butt! Wishing everyone a pain free (or at most manageable) day!

For those with AS I'm sure that title made you think I've gone crazy! What positive could you ever find in having ankylosing spondylitis (AS)? At the rate I'm going on the stomach viruses and methotrexate weekly nausea, I'll be back in my skinny jeans in no time! Joking aside...my husband has declared me the "upchuck champion". Not an award that I will display or even want to accept! The beginning of the week I felt as if my head was going to explode! Then it hit...here we go...the "upchucking" starts! Life with AS means taking drugs that 1. compromise your immune system 2. make you nauseous Which means-you are an easy target to catch EVERY stinking thing! Can I get a break for the nausea and throwing up please! So for today--which is supposed to be my "sick" day! Medicine day...I will skip for now. When you basically haven't eaten in a week, best not to continue that path. So methotrexate you will be postponed until I see fit to "...

Went to the rheumy Friday and she's still not happy about how I'm doing. Actually, I'm not either! Just thinking that 3 years ago...I WAS FINE! Now, I'm fighting pain, nausea, hair falling out, joint swelling, tired, headaches and the newest a freaking I twitch for a month! Yes, my eye has been twitching for almost a month now. Oh, you can see it..it's not just a little one. The entire lid is twitching. Wondering if anyone else has ever had a month long eye-twitch??? Is this just another something that I'll suffer through? Could it be something in my neck that is causing this? I've heard this one several times already-you know that's sometimes caused by stress. Can a person with A.S not have stress??!!! Could my neck, which has really been bothering my lately, be messing with a nerve that is causing it? I don't know, but this eye twitch, wakes me in middle of the night---WHILE I'M SLEEPING!!! My eye twitches while I'm even a sleep! Craziest t...

The bro-in-law asked me how I was feeling today. I said, tired..like crap! Just my Thursday! He says, "you know what's good about Thursday"...ok, in my mind, I'm thinking are you really asking me if there is something good about the WORST day of my week...the day I get to fully experience the joy of methotrexate??!! So, I say, THE END--cause you know I'm thinking the end of the day...he says, nope! Friday is next! Gotta hand it to him, he's right! I'm so thankful tomorrow is Friday! Since Thanksgiving ALWAYS falls on Thursday and so does methotrexate, I decided that I'd skip the feeling of nausia and enjoy me some turkey and dressing! I really had to think long and hard if I wanted to inject that dreaded feeling today...knowing that I did feel very tired last week, but not the nausia was really on my mind today and I truly HATE this feeling!-yes, that means I took my meds! So---now, I'm fighting the feeling of tired, and nausia as I smell ...