you know what's good about Thursday..Friday is next!

By -
The bro-in-law asked me how I was feeling today. I said, tired..like crap! Just my Thursday! He says, "you know what's good about Thursday"...ok, in my mind, I'm thinking are you really asking me if there is something good about the WORST day of my week...the day I get to fully experience the joy of methotrexate??!! So, I say, THE END--cause you know I'm thinking the end of the day...he says, nope! Friday is next! Gotta hand it to him, he's right! I'm so thankful tomorrow is Friday!

Since Thanksgiving ALWAYS falls on Thursday and so does methotrexate, I decided that I'd skip the feeling of nausia and enjoy me some turkey and dressing! I really had to think long and hard if I wanted to inject that dreaded feeling today...knowing that I did feel very tired last week, but not the nausia was really on my mind today and I truly HATE this feeling!-yes, that means I took my meds!

So---now, I'm fighting the feeling of tired, and nausia as I smell the pie baking in the oven that must be taken to the chorus concert for sampling (fundraiser stuff-cause I'm certainly not "making" a pie today). I'm thinking I should've skipped the metho cause I just want to go to bed...ugh! Wonder if I should wear a sign at the concert as I'm trying to sell fundraiser food items...I'm not green because of the food I'm trying to sell...it's because of the medicine.

Comments

Post a Comment

Popular posts from this blog

3 jaw surgeries in one year?!

By -
Image
Ankylosing Spondylitis (AS) effects each person differently.  There's no magic cure for those of us that are living with this disease.  It's a trail and error of medication and sometimes changing your life style.  There are some "common" things that happen in those of us with AS such as-- The main similarities that can occur with any type of spondyloarthritis are: Inflammation in the pelvis and spine that usually causes inflammatory back pain Pain and/or swelling of any other joint in the body (hips, knees, ankles, feet, hands, wrists, elbows, shoulders, etc.) Uveitis/iritis , the rapid onset of marked pain and redness in one eye at a time Psoriasis skin rash Inflammation in the intestine (Crohn’s, ulcerative colitis, undifferentiated colitis) Dactylitis, or “sausage digits”, the inflammation along the tendons of the finger or toes Enthesitis, inflammation where tendons and ligaments meet the bone; this commonly occurs at the back or bottom of the heel. Pa
Read more

when your DR says, "you are making my brain hurt"

By -
Image
The moment the ophthalmologist puts his hands on the side of his head and says, “you’re making my brain hurt”.   Have you ever had this happen while at the specialist for a recurring visit? I have!   AS is in my eyes! Living with ankylosing spondylitis (AS) has certainly been a challenge. When you’re diagnosed they really don’t tell you all that can happen.   Basically, they just tell you about the potential for spinal fusion.   They leave out that AS can damage every joint in your body!   They leave out that AS can affect your eyes, your heart, your lungs, can cause inflammation behind your vocal box (not fun for this singer) and yes, can cause death. Why is it that so much information isn’t shared when you’re diagnosed?   One reason is simply that some doctors aren’t fully aware of what AS is and does.   Another reason is there is too much old data and information out there.   And lastly, AS effects each person differently.   Autoimmune diseases are complicated and hard to di
Read more

Weight loss/gain/bloating/gassiness.....

By -
Don’t confuse inflammation with weight gain/loss and/or bloating Just let that sink in a minute.  Some have already stopped reading...if you're wanting knowledge and education of inflammatory disease...continue on... Let me just begin this post by saying…yes! I’m going to make some of you mad and you’ll probably unfollow me on social media…I don’t really care. In a world of be careful what you say or post-- In a world of #metoo--- In a world of “political correctness”---- I see a LOT of folks saying (posting pictures) look at all this inflammation I had and now look at me.   Yes!   I see you’ve lost WEIGHT, but I do NOT see inflammation.   So to kick off this New Year full of get your gut right, drink my drink and/or join the gym and everything will be perfect in your life STOP! JUST! STOP!   You are actually insulting those of us who truly suffer from an inflammatory disease; those of us who are PRESCRIBED the only thing that will help with inflammation.   Do I belie
Read more