Last night was spent waking to pain through out the night. Pain in the shoulder..then pain in the hip! I think the reason AS folks are soo tired is because we're "not so much" on a night of 8 hours of sleep. Now, that would be something to scream about! Packing for the beach is not an easy task either....one would think it would be the same as without AS...but not so much!
I am excited to actually do nothing..not worry about anything and just sit and enjoy the sand, sun and the sound of the ocean. So, when you're on methotrexate and not supposed to be in the sun...are you supposed to vacation in Forks (I have teenaged daughters so if you don't know why I put that..go ask a teenage girl or the mom of one)??
Speaking of methotrexate....Fridays of course are "that shot" day and it always leaves me soo sick to the tummy for a few hours. Joys!
Decided that I'd let the hubby inject the B-12 in the right "cheek" this go round. Being left handed limits to the left side...hence a few too many bruises and I'm thinking that the left side of my rear is asking for a break.
Back to the whole packing for a vacation with AS.....I feel like a 90 year old women with all the meds I have to take. And let's not forget that humira MUST stay refrigerated---so thankful for them sending me the nice little travel pack. Maybe if they saved on some of those type give-aways and the ridiculous way they ship the med it wouldn't cost 1500.00 (for 2 shots)!! Oh, yea..that's not a typo. So thankful I have insurance! And soooo hoping that the "new healthcare" will not mess me up--which it just may. I'm thinking that it's really great having a president that smokes telling us about healthcare!!!!!
Does anyone have ever feel like there's this little bug crawling around in your ear? And the pain is sharp--is this yet another symtom of AS? I wonder. Of course hubby says I probably just need to flush the was out....really?!
Methotrexate and shot check
B-12 and shot check
Humira injection check
Folic Acid check
pain meds...leaving them at home! I refuse to take them..home or vacation
Living with AS.....and the story goes on!